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        <title><![CDATA[rare diseases - Mahalo]]></title>
        <link>http://www.mahalo.com//rare-diseases</link>
        <description><![CDATA[]]></description>
        <language>en-US</language>
        <pubDate>Mon, 12 Oct 2009 01:33:40 UTC</pubDate>
        <managingEditor>contact@mahalo.com</managingEditor>
        <webMaster>contact@mahalo.com</webMaster>
        
            


    <item>
        <title><![CDATA[HON - List of Rare Diseases]]></title>
        <link><![CDATA[http://www.hon.ch/HONselect/RareDiseases/]]></link>
        <description><![CDATA[HON - List of Rare Diseases]]></description>
        
        <guid><![CDATA[http://www.hon.ch/HONselect/RareDiseases/]]></guid>
    </item>

    <item>
        <title><![CDATA[Disease Information from NORD, National Organization for Rare ...]]></title>
        <link><![CDATA[http://www.rarediseases.org/]]></link>
        <description><![CDATA[National Organization for Rare Disorders is dedicated to helping people with rare, orphan diseases. Rarediseases.org contains information on the prevention, treatment and cure of rare diseases.]]></description>
        
        <guid><![CDATA[http://www.rarediseases.org/]]></guid>
    </item>

    <item>
        <title><![CDATA[Disease Information from NORD, National Organization for Rare ...]]></title>
        <link><![CDATA[http://www.rarediseases.org/search/orglist.html]]></link>
        <description><![CDATA[National Organization for Rare Disorders is dedicated to helping people with rare, orphan diseases. Rarediseases.org contains information on the prevention, treatment and cure of rare diseases.]]></description>
        
        <guid><![CDATA[http://www.rarediseases.org/search/orglist.html]]></guid>
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    <item>
        <title><![CDATA[NIH Office of Rare Diseases Research (ORDR)]]></title>
        <link><![CDATA[http://rarediseases.info.nih.gov/]]></link>
        <description><![CDATA[The Office of Rare Diseases Research (ORDR) at the National Institutes of Health (NIH)   											coordinates research and information on rare diseases at the NIH and for the   											rare diseases community. The ORDR Web site provides information for patients and   											their families with rare diseases and about NIH- and ORDR-sponsored biomedical   											research and scientific conferences]]></description>
        
        <guid><![CDATA[http://rarediseases.info.nih.gov/]]></guid>
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        <title><![CDATA[Rare Diseases - Information About Rare Diseases]]></title>
        <link><![CDATA[http://rarediseases.about.com/]]></link>
        <description><![CDATA[]]></description>
        
        <guid><![CDATA[http://rarediseases.about.com/]]></guid>
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    <item>
        <title><![CDATA[Pfizer Deal Signals a Move Into Treating Rare Diseases]]></title>
        <link><![CDATA[http://www.nytimes.com/2009/12/02/business/02drug.html]]></link>
        <description><![CDATA[The deal signals the start of an effort by Pfizer to enter the business of selling ultra-expensive drugs for ultra-rare diseases, a market that big ...]]></description>
        <pubDate>Tue, 1 Dec 2009 04:12:00 UTC</pubDate>
        <guid><![CDATA[http://www.nytimes.com/2009/12/02/business/02drug.html]]></guid>
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    <item>
        <title><![CDATA[FDA Grants Cequent IND - Clears Way for First-Ever Clinical Trial of Orally ...]]></title>
        <link><![CDATA[http://www.prnewswire.com/news-releases/fda-grants-cequent-ind---clears-way-for-first-ever-clinical-trial-of-orally-delivered-rnai-therapeutic-ceq508-a-tkrnai-drug-candidate-in-oncology-78977072.html]]></link>
        <description><![CDATA[Phase I studies of novel therapeutics for such rare, underserved diseases are often allowed to enroll patients as opposed to healthy volunteers, ...]]></description>
        <pubDate>Thu, 10 Dec 2009 10:06:00 UTC</pubDate>
        <guid><![CDATA[http://www.prnewswire.com/news-releases/fda-grants-cequent-ind---clears-way-for-first-ever-clinical-trial-of-orally-delivered-rnai-therapeutic-ceq508-a-tkrnai-drug-candidate-in-oncology-78977072.html]]></guid>
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    <item>
        <title><![CDATA[Blood Stem-Cell Transplant Regimen Reverses Sickle Cell Disease in Adults]]></title>
        <link><![CDATA[http://www.nih.gov/news/health/dec2009/niddk-09.htm]]></link>
        <description><![CDATA[... supporting basic, clinical and translational medical research, and it investigates the causes, treatments, and cures for both common and rare diseases. ...]]></description>
        <pubDate>Thu, 10 Dec 2009 08:08:00 UTC</pubDate>
        <guid><![CDATA[http://www.nih.gov/news/health/dec2009/niddk-09.htm]]></guid>
    </item>

    <item>
        <title><![CDATA[Lundbeck Names Sean Nolan as New CEO of its Lundbeck Inc. US Subsidiary]]></title>
        <link><![CDATA[http://www.earthtimes.org/articles/show/lundbeck-names-sean-nolan-as,1085149.shtml]]></link>
        <description><![CDATA[The company is committed to providing innovative therapies that fulfill unmet medical needs of people with CNS disorders and rare diseases for which few, ...]]></description>
        <pubDate>Thu, 10 Dec 2009 12:02:00 UTC</pubDate>
        <guid><![CDATA[http://www.earthtimes.org/articles/show/lundbeck-names-sean-nolan-as,1085149.shtml]]></guid>
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    <item>
        <title><![CDATA[from a rare disease]]></title>
        <link><![CDATA[http://www.huffingtonpost.com/jim-luce/rare-diseases-increasingl_b_165780.html]]></link>
        <pubDate>Mon, 12 Oct 2009 01:33:48 UTC</pubDate>
        <guid><![CDATA[http://www.huffingtonpost.com/jim-luce/rare-diseases-increasingl_b_165780.html]]></guid>
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    <item>
        <title><![CDATA[very rare disease called]]></title>
        <link><![CDATA[http://www.blogcadre.com/taxonomy/term/905]]></link>
        <pubDate>Mon, 12 Oct 2009 01:33:48 UTC</pubDate>
        <guid><![CDATA[http://www.blogcadre.com/taxonomy/term/905]]></guid>
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    </item>

    <item>
        <title><![CDATA[from a rare disease,]]></title>
        <link><![CDATA[http://listofrarediseases.com/list-of-rare-diseases/pan-european-panacea-needed-for-rare-diseases/]]></link>
        <pubDate>Mon, 12 Oct 2009 01:33:48 UTC</pubDate>
        <guid><![CDATA[http://listofrarediseases.com/list-of-rare-diseases/pan-european-panacea-needed-for-rare-diseases/]]></guid>
        <enclosure url="http://images.google.com/images?q=tbn:DeRWTvU_ENi_TM:listofrarediseases.com/wp-content/uploads/2008/11/neonatal-adrenoleukodystrophy_small.jpg" type="image" />
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    <item>
        <title><![CDATA[In very rare cases,]]></title>
        <link><![CDATA[http://health.howstuffworks.com/rare-diseases.htm]]></link>
        <pubDate>Mon, 12 Oct 2009 01:33:48 UTC</pubDate>
        <guid><![CDATA[http://health.howstuffworks.com/rare-diseases.htm]]></guid>
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    <item>
        <title><![CDATA[Rare Diseases cartoon 7]]></title>
        <link><![CDATA[http://www.cartoonstock.com/directory/r/rare_diseases.asp]]></link>
        <pubDate>Mon, 12 Oct 2009 01:33:48 UTC</pubDate>
        <guid><![CDATA[http://www.cartoonstock.com/directory/r/rare_diseases.asp]]></guid>
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    <item>
        <title><![CDATA[Rare Disease Day 2009]]></title>
        <link><![CDATA[http://www.flickr.com/photos/69145729@N00/3316107783]]></link>
        <pubDate>Mon, 12 Oct 2009 01:33:47 UTC</pubDate>
        <guid><![CDATA[http://www.flickr.com/photos/69145729@N00/3316107783]]></guid>
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    <item>
        <title><![CDATA[Rare Disease Day 2009]]></title>
        <link><![CDATA[http://www.flickr.com/photos/69145729@N00/3316107083]]></link>
        <pubDate>Mon, 12 Oct 2009 01:33:47 UTC</pubDate>
        <guid><![CDATA[http://www.flickr.com/photos/69145729@N00/3316107083]]></guid>
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    <item>
        <title><![CDATA[Rare Disease Day 2009]]></title>
        <link><![CDATA[http://www.flickr.com/photos/69145729@N00/3316106137]]></link>
        <pubDate>Mon, 12 Oct 2009 01:33:47 UTC</pubDate>
        <guid><![CDATA[http://www.flickr.com/photos/69145729@N00/3316106137]]></guid>
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    <item>
        <title><![CDATA[Rare Disease Day 2009]]></title>
        <link><![CDATA[http://www.flickr.com/photos/69145729@N00/3316933820]]></link>
        <pubDate>Mon, 12 Oct 2009 01:33:47 UTC</pubDate>
        <guid><![CDATA[http://www.flickr.com/photos/69145729@N00/3316933820]]></guid>
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    <item>
        <title><![CDATA[Rare Disease Day 2009]]></title>
        <link><![CDATA[http://www.flickr.com/photos/69145729@N00/3316934404]]></link>
        <pubDate>Mon, 12 Oct 2009 01:33:47 UTC</pubDate>
        <guid><![CDATA[http://www.flickr.com/photos/69145729@N00/3316934404]]></guid>
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    <item>
        <title><![CDATA[Rare Diseases: Necrotizing]]></title>
        <link><![CDATA[http://nursewriter.com/2008/06/rare-disease-of-week-necrotizing.html]]></link>
        <pubDate>Mon, 12 Oct 2009 01:33:48 UTC</pubDate>
        <guid><![CDATA[http://nursewriter.com/2008/06/rare-disease-of-week-necrotizing.html]]></guid>
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    <item>
        <title><![CDATA[Rare Disease Day 2009]]></title>
        <link><![CDATA[http://www.flickr.com/photos/69145729@N00/3316105147]]></link>
        <pubDate>Mon, 12 Oct 2009 01:33:47 UTC</pubDate>
        <guid><![CDATA[http://www.flickr.com/photos/69145729@N00/3316105147]]></guid>
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    <item>
        <title><![CDATA[Rare disease - causing patients to turn to stone]]></title>
        <link><![CDATA[http://www.youtube.com/watch?v=FsFPt0FATJc&amp;feature=youtube_gdata]]></link>
        <pubDate>Mon, 12 Oct 2009 01:33:48 UTC</pubDate>
        <guid><![CDATA[http://www.youtube.com/watch?v=FsFPt0FATJc&amp;feature=youtube_gdata]]></guid>
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    <item>
        <title><![CDATA[A rare disease, a loving father]]></title>
        <link><![CDATA[http://www.youtube.com/watch?v=ELRzPWk2NAs&amp;feature=youtube_gdata]]></link>
        <pubDate>Mon, 12 Oct 2009 01:33:48 UTC</pubDate>
        <guid><![CDATA[http://www.youtube.com/watch?v=ELRzPWk2NAs&amp;feature=youtube_gdata]]></guid>
    </item>

    <item>
        <title><![CDATA[National Organization for Rare Disorders 25th Anniversary]]></title>
        <link><![CDATA[http://www.youtube.com/watch?v=Svm0lL-5C-o&amp;feature=youtube_gdata]]></link>
        <pubDate>Mon, 12 Oct 2009 01:33:48 UTC</pubDate>
        <guid><![CDATA[http://www.youtube.com/watch?v=Svm0lL-5C-o&amp;feature=youtube_gdata]]></guid>
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    <item>
        <title><![CDATA[Rare Disease Day 2009]]></title>
        <link><![CDATA[http://www.youtube.com/watch?v=SYRDgWHPU-k&amp;feature=youtube_gdata]]></link>
        <pubDate>Mon, 12 Oct 2009 01:33:48 UTC</pubDate>
        <guid><![CDATA[http://www.youtube.com/watch?v=SYRDgWHPU-k&amp;feature=youtube_gdata]]></guid>
    </item>

    <item>
        <title><![CDATA[EuroNews - Futuris - Rare diseases reaserch boost]]></title>
        <link><![CDATA[http://www.youtube.com/watch?v=2eUy-hS_XGs&amp;feature=youtube_gdata]]></link>
        <pubDate>Mon, 12 Oct 2009 01:33:48 UTC</pubDate>
        <guid><![CDATA[http://www.youtube.com/watch?v=2eUy-hS_XGs&amp;feature=youtube_gdata]]></guid>
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        <title><![CDATA[Highlights of Dinner Debate - European Parliament - March 3 2009 - Rare Disease Day]]></title>
        <link><![CDATA[http://www.youtube.com/watch?v=KgN4jZE3N8E&amp;feature=youtube_gdata]]></link>
        <pubDate>Mon, 12 Oct 2009 01:33:48 UTC</pubDate>
        <guid><![CDATA[http://www.youtube.com/watch?v=KgN4jZE3N8E&amp;feature=youtube_gdata]]></guid>
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        <title><![CDATA[International Day of Rare Diseases, Consigo, Rtp2, 23/03/08]]></title>
        <link><![CDATA[http://www.youtube.com/watch?v=icCFomdqtQg&amp;feature=youtube_gdata]]></link>
        <pubDate>Mon, 12 Oct 2009 01:33:48 UTC</pubDate>
        <guid><![CDATA[http://www.youtube.com/watch?v=icCFomdqtQg&amp;feature=youtube_gdata]]></guid>
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    <item>
        <title><![CDATA[Rare Diseases Day 2008 in Hungary]]></title>
        <link><![CDATA[http://www.youtube.com/watch?v=LgS4s-6YLsg&amp;feature=youtube_gdata]]></link>
        <pubDate>Mon, 12 Oct 2009 01:33:48 UTC</pubDate>
        <guid><![CDATA[http://www.youtube.com/watch?v=LgS4s-6YLsg&amp;feature=youtube_gdata]]></guid>
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    <item>
        <title><![CDATA[ALDE Public Hearing on Rare Diseases]]></title>
        <link><![CDATA[http://www.youtube.com/watch?v=mhdaw4mCEPg&amp;feature=youtube_gdata]]></link>
        <pubDate>Mon, 12 Oct 2009 01:33:48 UTC</pubDate>
        <guid><![CDATA[http://www.youtube.com/watch?v=mhdaw4mCEPg&amp;feature=youtube_gdata]]></guid>
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    <item>
        <title><![CDATA[Rare Disease Day 2009, Feb 28]]></title>
        <link><![CDATA[http://www.youtube.com/watch?v=bqEKxygDZg0&amp;feature=youtube_gdata]]></link>
        <pubDate>Mon, 12 Oct 2009 01:33:48 UTC</pubDate>
        <guid><![CDATA[http://www.youtube.com/watch?v=bqEKxygDZg0&amp;feature=youtube_gdata]]></guid>
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    <item>
        <title><![CDATA[Rare Diseases - NJN News Healthwatch Report]]></title>
        <link><![CDATA[http://www.youtube.com/watch?v=6EmjSyae2JY&amp;feature=youtube_gdata]]></link>
        <pubDate>Mon, 12 Oct 2009 01:33:48 UTC</pubDate>
        <guid><![CDATA[http://www.youtube.com/watch?v=6EmjSyae2JY&amp;feature=youtube_gdata]]></guid>
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        <title><![CDATA[International Day of Rare Diseases, TVI, 29/02/08]]></title>
        <link><![CDATA[http://www.youtube.com/watch?v=D-RVC5BeTiQ&amp;feature=youtube_gdata]]></link>
        <pubDate>Mon, 12 Oct 2009 01:33:48 UTC</pubDate>
        <guid><![CDATA[http://www.youtube.com/watch?v=D-RVC5BeTiQ&amp;feature=youtube_gdata]]></guid>
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        <title><![CDATA[Pfizer Deal Signals Move Into Rare Diseases - DealBook Blog ...]]></title>
        <link><![CDATA[http://dealbook.blogs.nytimes.com/2009/12/02/pfizer-deal-signals-a-move-into-treating-rare-diseases/]]></link>
        <description><![CDATA[Pfizer said Tuesday that it had licensed the worldwide rights to a treatment for Gaucher disease, a rare genetic disorder, from Protalix Biotherapeutics, an Israeli biotechnology company.]]></description>
        <pubDate>Wed, 2 Dec 2009 02:01:00 UTC</pubDate>
        <guid><![CDATA[http://dealbook.blogs.nytimes.com/2009/12/02/pfizer-deal-signals-a-move-into-treating-rare-diseases/]]></guid>
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        <title><![CDATA[Innovation Pass for drugs for rare diseases « pharma news]]></title>
        <link><![CDATA[http://www.pharmajobs.co.uk/blog/index.php/2009/11/innovation-pass-for-drugs-for-rare-diseases/]]></link>
        <description><![CDATA[The Office for Life Sciences (OLS) Blueprint, published in July, detailed the Government&#39;s commitment to create the &#39;Innovation Pass&#39; to allow access to drugs for rare diseases that are not yet appraised by NICE, and where there is ...]]></description>
        <pubDate>Sat, 28 Nov 2009 08:41:00 UTC</pubDate>
        <guid><![CDATA[http://www.pharmajobs.co.uk/blog/index.php/2009/11/innovation-pass-for-drugs-for-rare-diseases/]]></guid>
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        <title><![CDATA[Of Pfizer, a New Treatment for a Rare Disease and Carrot Cells]]></title>
        <link><![CDATA[http://www.procto-med.com/of-pfizer-a-new-treatment-for-a-rare-disease-and-carrot-cells/]]></link>
        <description><![CDATA[Pfizer&#39;s deal today with Israeli biotech Protalix BioTherapeutics to license most of the rights for a promising therapy for a rare disease caught our eye.]]></description>
        <pubDate>Tue, 1 Dec 2009 13:00:00 UTC</pubDate>
        <guid><![CDATA[http://www.procto-med.com/of-pfizer-a-new-treatment-for-a-rare-disease-and-carrot-cells/]]></guid>
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        <title><![CDATA[Social Science Statistics Blog: breast cancer, rare diseases, and ...]]></title>
        <link><![CDATA[http://www.iq.harvard.edu/blog/sss/archives/2009/11/breast_cancer_r.shtml]]></link>
        <description><![CDATA[So all of this got me thinking that this could maybe be a straightforward application of the &quot;rare diseases&quot; example of Bayes&#39; Rule (which many people see in their first probability course). I did some (more) digging around in one of ...]]></description>
        <pubDate>Thu, 26 Nov 2009 07:03:00 UTC</pubDate>
        <guid><![CDATA[http://www.iq.harvard.edu/blog/sss/archives/2009/11/breast_cancer_r.shtml]]></guid>
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    <item>
        <title><![CDATA[Physicians&#39; Guide to Rare Diseases]]></title>
        <link><![CDATA[http://www.amazon.com/exec/obidos/ASIN/0962871613/mahalo-20/]]></link>
        <description><![CDATA[]]></description>
        
        <guid><![CDATA[http://www.amazon.com/exec/obidos/ASIN/0962871613/mahalo-20/]]></guid>
        
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        <title><![CDATA[Nord Compendium of Rare Diseases and Disorders (Nord, Nord Compendium of Rare Disorders)]]></title>
        <link><![CDATA[http://www.amazon.com/exec/obidos/ASIN/0913113417/mahalo-20/]]></link>
        <description><![CDATA[]]></description>
        
        <guid><![CDATA[http://www.amazon.com/exec/obidos/ASIN/0913113417/mahalo-20/]]></guid>
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