Mesothelioma is a rare and aggressive form of cancer that affects people who have, at some point in their lives, worked around asbestos. They may also have been indirectly exposed if they lived with a family member who worked around asbestos and brought it home on their clothing or in their hair.
Mesothelioma affects four areas of the body: the lungs, the heart, the abdominal cavity and the reproductive organs. The cancer originates in the mesothelium which is a membrane that surrounds these areas.
Mesothelioma symptoms are non-specific and can be attributed to many other, less serious illnesses. Because of this, once a diagnosis has been made, patients are often in advanced stages of cancer. When this occurs, treatment may not help and about the only available option for patients is palliative care. Finding out that a patient has a terminal disease with no cure can be devastating to the patients themselves and their families and loved ones. As well, even if the cancer has been caught early and there is a chance of recovery, patients may still need support. It is important for people with this diagnosis to learn how to cope with mesothelioma so they can learn how to manage and have optimal quality of life.
Featured Video: Mesothelioma Case Study
When patients are diagnosed with a serious illness such as mesothelioma, many symptoms and side effects make it difficult to cope. Sometimes hearing from others who have successfully gone through various procedures may help to alleviate one’s fears. Take a look at this short video where a mesothelioma patient talks about her symptoms and the treatments she underwent for the cancer.
Step 1: Learn about Mesothelioma
Sometimes just getting a handle on an illness such as mesothelioma can give patients a sense of power and ownership. Even though you cannot change the fact that you have the disease, learn as much about mesothelioma as possible by talking with doctors and looking up information on reputable websites. Watch videos on YouTube where mesothelioma survivors discuss their illness and give tips to others who are suffering from the disease.
Read books and magazine articles that discuss the disease. Libraries and bookstores are good places to start. Ask a bookstore employee or librarian to show you the section on surviving cancer or even mesothelioma specifically.
Create a list of questions that might come up between doctor visits and bring it with you to appointments. Take a few moments before or after your appointment to go over your list with your doctor or other medical professional. Ask them to give you brochures and pamphlets that discuss mesothelioma and also ask them to provide written information on available clinical trials. When the doctor is providing you with important information, write it down and take notes. This is especially important early in the diagnosis when you may be feeling confused and overwhelmed. Writing things down will allow you to review it later after you have had some time.http://www.mesothelioma-aid.org/coping-physical.htm
Step 2: Join a Support Group
Talking to others with the illness may be beneficial as you try to cope with mesothelioma. Support groups are available online and in person so you can meet other with the illness. Other patients are often good resources who are able to provide helpful information regarding doctors, clinical trials and medications and treatments.
You may be able to find a mesothelioma support group through your doctor. Ask if they know of any in your area. If you have internet access, you may be able to find an online support group as well. These can often take place in the form of an online forum or chat room. Forums are especially great places to find information on medication, nutrition, emotions, clinical trials and other aspects of coping with mesothelioma. http://www.mesotheliomacenter.org/support/mesothelioma-support.php
If you are a family member or a loved one of a patient who has been diagnosed with mesothelioma, it will be important for you to find support from others who are dealing with a similar diagnosis. Family members, especially if they are primary caregivers, may have a very emotional time going through the illness with their loved one. If so, reach out to a local hospital or check the internet to find a support group for family members of mesothelioma patients.
Step 3: Talk with Others about your Illness
Patients with mesothelioma may feel isolated or afraid due to the nature of their illness. Talking with others may help alleviate fears and provide you with coping mechanisms that can help you through your illness. If you have been diagnosed with mesothelioma, you may want to discuss your illness with friends and family members especially those that are close to you. Unlike a support group of people with the same type of cancer, friends and family may not realize how you feel physically or emotionally. Speak up and let them know what’s going on with you so they can provide you with support if possible. If you are a religious person, reaching out to your clergy may help. These individuals often have had training in guiding people with life-threatening illnesses.
Talking with your medical professional may help as you try to cope with mesothelioma. They have possibly seen other patients before you with the same illness and may be able to offer assistance in the way of resources. They may also be able to help you find ways to alleviate your fears and help you to find ways to live with mesothelioma. http://www.mesothelioma-aid.org/coping-people.htm
