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Batten disease is a genetically inherited disease that is characterized by the development of lipopigments in the nervous system and eyes. Lipopigments are protein and lipid substances. When they deposit into tissue, lipopigments inhibit tissue functioning. Batten disease causes a person's mental capabilities and eyesight to degenerate.BDSRA: Batten Disease General Information NINDS: NINDS Batten Disease Information Page
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Fast Facts
- Alternate name: Spielmeyer-Vogt-Sjogren-Batten disease
- Discovered in 1903BDSRA: Batten Disease General Information
- Discovered by F. E. BattenBDSRA: Batten Disease General Information
- Most often fatalBDSRA: Batten Disease General Information
- A genetic diseaseBDSRA: Batten Disease General Information
- Usually death occurs before the age of 20BDSRA: Batten Disease General Information
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Treatment
The disease has no cure or prevention, and the disease's progression cannot be slowed. Consequently, the symptoms are treated as they arise.BDSRA: Batten Disease General Information -
United States Statistics
The occurrence in the United States is about three out of every 100,000 births. Occurrence is higher in families that are known to carry the defective gene.BDSRA: Batten Disease General Information -
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The Mahalo Top 7
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The Batten's Page: What is Batten Disease?
battens.org.au -
National Institute of Neurological Disorders and Stroke: Batten Disease Information Page
ninds.nih.gov -
Batten Disease Support and Research Association: Batten Disease General Information
bdsra.org -
University of Pittsburgh Medical Center: Batten Disease
upmc.com -
National Institute of Neurological Disorders and Stroke: Batten Disease Press Releases
ninds.nih.gov -
Wikipedia: Batten Disease
en.wikipedia.org -
The National Womens Health Information Center: Batten Disease
4woman.gov
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The Batten's Page: What is Batten Disease?
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Batten Disease on Amazon | View All
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Batten Disease: Diagnosis, Treatment, Research (Advances in Genetics, Vol 45) - $170.00
This title will present all current knowledge of Batten disease from research to clinical evaluation. NCL is not well recognized in underdeveloped countries because the diagnostic technology is lacking. With the information in this volume, ...
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Batten Disease: Diagnosis, Treatment, Research (Advances in Genetics, Vol 45)
Amazon.com: Batten Disease: Diagnosis, Treatment, Research (Advances in Genetics, Vol 45): Nanbert Zhong K. E. Wisniewski: Books
Amazon -
Batten disease (SuDoc HE 20.3502:B 32)
Amazon.com: Batten disease (SuDoc HE 20.3502:B 32): U.S. Dept of Health and Human Services: Books
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Epizootic hemorrhagic disease in cattle, western Turkey.(DISPATCHES): An article from: Emerging Infectious Diseases - $9.95
Amazon.com: Epizootic hemorrhagic disease in cattle, western Turkey.(DISPATCHES): An article from: Emerging Infectious Diseases: Ethem Mutlu Temizel, Kadir Yesilbag, Carrie Batten, Sezgin Senturk, Narender S. Maan, Peter Paul Clement Merten...
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The Official Parent's Sourcebook on Batten Disease: A Revised and Updated Directory for the Internet Age - $28.95
This book has been created for parents who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells pare...
Amazon
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Batten Disease on Twitter Powered by Twitter
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Our dancers are performing at the Batten Disease Benefit tomorrow at New Community Church off of Six Forks... http://bit.ly/3kvCoo
@stagedoordance | November 07, 2009 02:08 AM -
Come out to the Batten disease Festival of Hope Saturday! 9621 Six forks Rd. The demo team will perform at 12 noon. http://bit.ly/3FUTDd
@peckstkd | November 07, 2009 12:57 AM -
So, Batten Disease is a real disease? And the kid's name really is Jasper? You're not making any of this up?
@ddemaree | November 06, 2009 11:55 PM -
Take a look at http://www.marypaytonsmiracle.com/ for a little girl in Mandeville, LA suffering from Batten Disease.
@wotpast | November 06, 2009 12:07 PM
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Questions and Answers About Batten Disease | View All | Ask a Question
View All Batten Disease Questions (126) | Ask a QuestionIs this a case of schizophrenia?It seems that more and more Dr/s are prescribing drugs for this disease. (1 Answer)It could be a case of schizophrenia. A professional evaluation will certainly be able to tell... and there are a few clinical tests that will show schizophrenia.It might seem like ... read morediseases caused by protozoa in large animals (1 Answer)Goats: "Coccidiosis is caused by protozoans; a coccidia lives inside the cell and reproduces there until it ruptures the cell wall and releases the oocysts. Cryptosporidiosis & Leptospirosis are also ... read moreWhat diseases are unique to Thailand? (1 Answer)There are many mosquito diseases unique to Thailand. You can find them here: http://www.thailandguru.com/health-diseases.html read moreWhat are the top ten most common diseases cause from DNA mutations? (2 Answers)1. Sickle Cell Anemia is a blood disease that shortens life expectancy.Over 5 million in America have sickle cell. 2.Down Syndrome is a disease that affects the way a child ... read more
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Batten Disease Treatment Options
- National Institute of Neurological Disorders and Stroke: Is There Any Treatment?



